ADHD & autism
You are probably not lazy, and you have probably not been imagining it.
A lot of people arrive at this in their thirties or forties, after a working life of being told they have potential, are too sensitive, or just need to try harder. If that is you, this page is about what to do next: how diagnosis actually works in Germany, what it costs, what it unlocks, and what to do while you wait.
Nothing here requires a diagnosis, a referral, or certainty. Suspecting is enough to read on.
Diese Seite auf Deutsch
The short version
If you read nothing else on this page.
Who can diagnose
In Germany: specialists in psychiatry and psychotherapy, neurologists, or a specialised ADHD or autism outpatient clinic (Ambulanz). Your GP cannot diagnose it, but can refer you.
How long
Realistically three to nine months for an appointment in a large city, and often longer for autism. Start the process before you feel ready — the queue is the slow part, not the decision.
Free advice while you wait
teilhabeberatung.de
EUTB — free, independent, nationwide advice on disability rights and benefits. No diagnosis required to walk in.
If it is bad right now
Autistic and ADHD people are at meaningfully higher risk of suicide, and that is a consequence of how the world fits, not of who you are. Crisis lines: kantholz93.com/suicide. Immediate danger: 112.
Getting assessed as an adult in Germany
The system was built around children, and adult assessment has been bolted on afterwards. It is navigable, but nobody hands you the map.
The route
Start with your GP (Hausärztin) and ask for an Überweisung to a psychiatrist or neurologist. You do not strictly need one with statutory insurance, but it speeds things up and puts your suspicion on record.
Call 116 117 — the same Terminservicestelle that arranges therapy appointments also arranges specialist ones. Say clearly that you are seeking an assessment for ADHD or autism.
Ring practices directly during their telefonische Sprechzeiten, and ask specifically whether they assess adults. Many psychiatrists do not, and finding out on the phone saves you three months.
University outpatient clinics (Universitätsambulanzen) often run dedicated adult ADHD or autism assessment services and are usually the most competent option. Waiting lists are long and some open only in registration windows — worth setting a reminder rather than giving up.
What the assessment involves
A proper ADHD assessment is a long clinical interview plus validated questionnaires — typically the ASRS for current symptoms and the Wender-Utah scale for childhood — sometimes neuropsychological testing, and careful ruling-out of other explanations. School reports and a parent's recollection help, because the diagnosis requires signs from childhood, but their absence is not disqualifying. Assessment for autism in adults works similarly and usually takes more than one appointment.
The German S3 clinical guideline on ADHD was substantially revised in 2026, and one of the main changes is tightening who is qualified to diagnose. That is good news for quality and bad news for waiting times. If a practitioner offers you a diagnosis after twenty minutes and a leaflet, get a second opinion.
Cost
With statutory insurance (gesetzlich versichert), assessment by a practice with a Kassensitz is covered. Private assessments run roughly several hundred to well over a thousand euros and are not automatically recognised afterwards — before paying, ask specifically whether the report will be accepted by your Krankenkasse and by prescribers, because a diagnosis nobody downstream accepts is an expensive piece of paper.
A caution about autism assessment specifically
Autismus Deutschland, the national organisation, currently states that it cannot recommend specific diagnostic addresses because waiting lists are closed and catchment areas are restricted. That is an unusually honest admission from an umbrella body, and it tells you the scale of the bottleneck. Their regional member associations and the therapy-centre map on their site are still the best starting point.
Do you actually need a diagnosis?
Worth answering honestly before you spend a year in a queue, because the answer is genuinely “it depends what you want from it”.
A diagnosis is the only route to
Medication. There is no way around this one.
Formal Nachteilsausgleich in exams, study and training.
A Grad der Behinderung and, from GdB 50, a Schwerbehindertenausweis with its legal protections.
Eingliederungshilfe, Persönliches Budget, Budget für Arbeit, Arbeitsassistenz.
Being believed by institutions that will not take your word for it.
You do not need one to
Use EUTB advice, self-help groups, or peer communities.
Change how you work, sleep, plan and organise your life.
Ask an employer for quieter conditions or written instructions. Most accommodations cost nothing and need no paperwork.
Understand yourself differently, which is often the part that actually changes things.
Belong. Self-identification is taken seriously in most autistic and ADHD communities, precisely because access to assessment is so unequal.
One honest caveat in both directions: a diagnosis is a medical record. It is protected health data and you are under no general obligation to disclose it to an employer — but it can matter for private health and life insurance applications, and for a small number of professions. That is not a reason to avoid assessment. It is a reason to know it before you are asked.
What it unlocks in Germany
This is the part most people never find out about, and it is where the practical difference lives.
EUTB — free advice
No diagnosis needed
teilhabeberatung.de finds your nearest office. The Ergänzende unabhängige Teilhabeberatung is free, nationwide, and deliberately independent of the authorities that decide your applications — which is the point of it. They advise on GdB applications, Nachteilsausgleich, Eingliederungshilfe, work and everyday support, and many offices are staffed by people with disabilities themselves. Genuinely one of the best-kept secrets in the German system.
Grad der Behinderung
Applied for at the Versorgungsamt
A GdB is a number from 10 to 100 describing how much your participation is impaired — not how “bad” you are. For autism the full range is possible depending on impact. For ADHD it is usually assessed where there are substantial additional impairments. From GdB 50 you are schwerbehindert and can request a Schwerbehindertenausweis, which brings extra dismissal protection, additional leave, earlier pension options and tax allowances.
Applications are frequently underestimated on first assessment. A Widerspruch within one month is normal, expected, and often succeeds. Do not treat the first decision as final — this is exactly what EUTB and the VdK or SoVD advise on.
Nachteilsausgleich
School, training, university
A legal adjustment to conditions so that an exam measures your knowledge rather than your executive function. Common forms: 25–50% extra time, a separate quiet room, breaks, splitting an exam, permission to use noise protection, or an alternative format.
You do not need a Schwerbehindertenausweis — universities generally work from the definition of disability in § 2 SGB IX, meaning a long-term impairment. Apply through the disability officer (Beauftragte:r für Studierende mit Behinderung) or the examination office, and apply well before the exam period. It is almost never granted retroactively.
At work
§ 164 SGB IX
Severely disabled employees have a legal right to workplace adjustment — technical aids, flexible hours, structural changes, or personal support. In practice this covers things like a quieter workspace, noise-cancelling equipment, written rather than verbal instructions, or protected focus time.
Arbeitsassistenz & Budget für Arbeit
There is a legal right to reimbursement for necessary work assistance, funded through the Integrationsamt. The Budget für Arbeit (§ 61 SGB IX) can fund a job coach or specialist support in ordinary employment. The Integrationsamt advises employers too, which is useful — a manager who learns the support is externally funded usually becomes considerably more flexible.
Persönliches Budget
Money instead of services
A legal right to receive support as a cash budget you direct yourself, rather than as services someone else chooses — for household management, mobility, work or leisure assistance. You apply at a single provider, which then has to coordinate the others. Administratively heavy to set up, and for many autistic adults the difference between coping and not.
If you cannot work right now
Being signed off (krankgeschrieben) for burnout, depression or exhaustion while you wait for assessment is legitimate and common — the exhaustion is real whatever its name turns out to be. Longer term, medizinische Rehabilitation and Leistungen zur Teilhabe am Arbeitsleben through the Rentenversicherung exist precisely for keeping people in work. EUTB will explain which applies to you without trying to sell you anything.
Treatment, and what actually helps
Medication (ADHD)
Stimulants are the first-line treatment for adult ADHD and among the better-evidenced treatments in psychiatry. In Germany they are controlled substances (Betäubungsmittel), which means a special prescription, no repeats by phone, and a prescriber who is willing to take it on. Finding that prescriber is often harder than getting diagnosed — a well-documented gap where people are assessed and then left with a diagnosis and nobody to treat it. Ask about ongoing prescribing before you commit to an assessment provider.
Supply shortages have been a recurring problem in Germany. A pharmacy that knows you and orders ahead is worth more than convenience, and it is worth asking your prescriber early what the alternatives are if your medication becomes unavailable.
Therapy
Therapy does not treat ADHD or autism itself, and any practitioner promising to cure either is one to leave. What it does treat is what tends to accumulate on top: depression, anxiety, and the accurate but corrosive belief that you have been failing at things everyone else finds easy. For autistic people specifically, look for someone who has actually worked with autistic adults — the usual route in via 116 117 applies, and the section on getting a therapy place at kantholz93.com/suicide covers the mechanics.
The unglamorous things that help most
External structure beats willpower. Alarms, timers, lists, someone expecting you somewhere. This is not a moral failure; it is the accommodation working.
Body doubling. Doing a task with another person present, in the room or on a call, doing their own thing. Absurdly effective and free.
Reduce sensory load before you reduce demands. Loop earplugs, sunglasses indoors, a quieter route, fewer overhead lights. Many autistic people find their apparent social capacity doubles when the noise stops.
Sleep, seriously. Delayed sleep phase is extremely common in both, and chronic sleep debt looks exactly like worse ADHD and worse autistic burnout.
Autistic burnout is a real and distinct thing — a collapse in functioning after prolonged masking or overload, often mistaken for depression and made worse by being pushed. Rest, drastically reduced demands and dropped masking are what shorten it.
Outside Germany
United Kingdom
National Autistic Society
0808 800 4104
Mon–Fri 10:00–15:00. Impartial information and advice for autistic people, families and carers. autism.org.uk
Right to Choose
The single most useful thing to know in England: you can generally ask your GP to refer you to any qualified NHS-funded provider for an ADHD or autism assessment, not just the local service. Waits on that pathway have typically been considerably shorter. GPs vary in how readily they offer it — asking for it by name helps.
ADHD support
ADDISS: 020 8952 2800. ADHD Foundation: 0151 541 9020. ADHD UK is run by people with ADHD and keeps current guidance on assessment routes.
United States
CHADD — the main national ADHD organisation, with local support groups nationwide. ADDA is by and for adults with ADHD specifically, which makes it the more useful of the two if you were diagnosed late.
ASAN — the Autistic Self Advocacy Network, run by autistic people, and the reference point for policy and self-advocacy material. AANE runs programmes, groups and coaching for autistic adults and teens.
Anywhere
Almost every country has a national autism association and an ADHD association, and they are usually the fastest route to who assesses adults locally. Search for the national body rather than a private clinic — the clinics buy the advertising, the associations keep the honest list.
If it's your child
Broadly the same system, reached through different doors — and considerably faster than the adult route, which is the one genuine advantage of being a parent here.
Start with the Kinderarzt, who refers to a Kinder- und Jugendpsychiater or a Sozialpädiatrisches Zentrum (SPZ). SPZs are multidisciplinary, covered by statutory insurance, and generally the best-quality route for children.
Nachteilsausgleich at school is a legal entitlement and does not require a Schwerbehindertenausweis. Ask the school in writing, keep copies, and bring the diagnostic report. Extra time, a quiet room, and permission to leave a situation are the common ones.
Autismus-Therapie-Zentren (ATZ) provide ongoing therapy, usually funded as Eingliederungshilfe via the Jugendamt or Sozialamt.
autismus.de
maps the affiliated centres.
Parent organisations are the real infrastructure.
ADHS Deutschland e.V.
and the regional Autismus associations run groups, keep informal lists of which practitioners are competent, and know how your Bundesland actually behaves. Faster than any official directory.
On school refusal and meltdowns: both are usually signs of a demand exceeding capacity rather than defiance. Punishment reliably makes both worse. That is not a parenting opinion — it is what the intervention evidence shows.
People, not services
-
ADHS Deutschland e.V.
— the national ADHD association, with regional groups, guidance on Nachteilsausgleich in education and work, and material worth more than most of what a search engine returns.
-
Bundesverband Autismus Deutschland e.V.
— national umbrella body with regional member associations, therapy centres and family support.
-
nakos.de
— the national self-help directory. Search for ADHS or Autismus plus your area to find peer groups near you.
Autistic- and ADHD-led spaces are worth seeking out specifically. There is a real difference between support organised for neurodivergent people and support organised by them, and most people find the second one fits better.
At university: the Studierendenwerk's disability advisor handles Nachteilsausgleich, and many universities now have a neurodiversity or autism student group.
A note on the language
Most autistic adults prefer identity-first language — “autistic person” rather than “person with autism” — because it is not a thing carried separately from the self. Preferences vary and nobody will be offended by being asked. The German system still speaks in the vocabulary of disorders and deficits, and you will meet that vocabulary on every official form; it is a description of how the paperwork is organised, not of you.